Monday, September 13, 2010

11 months!!

Can't hardly wait for this month to finish!! She is going to be a year old in just weeks!! We have her tutu outfit ready and her party hat and tiara all ready!! Cupcakes are ordered and friends are on hold for the big day!! And the best part is she shares this special day with her bubba!! Kaelyn is so playing the birthday on the same day card!! It make him and Mia all the closer!! And all secrets told- I think she really favors that boy!! She calls out bubba in such a sweet little voice when he walks away or enters the room. She reaches for him when she won't go to anyone else!! He makes all things better in her world. And oh how it warms his heart and mine!! I love it!!

We had our first crawling this weekend!! It was so exciting!!! Of course!!

She has been a bit underweather with all the nasal congestion and runny nose stuff. But today we went for an RSV shot screening and got some really great help with this!! I am so excited to have a doctor not just say that it's because she has down syndrome and it will just be a way of life for her- nope this one said She doesn't have to live like that!! So we are on some new meds and a progressive treatment to help this little girl breath better!! I am stoked!! And hopeful that she will qualify for the RSV shots (insurance) so we can stay out of the hospital this year!! Shocking how much one little injection can cost if insurance chooses to deny. $1000 a shot and they take them in a series of 7... ouch!!

We also learned that she has Tracheomalacia. This would be the noisy sounds I am always hearing in her breathing and causing some of her feeding issues... and while this is certainly milder as she is getting older. It would have explained a ton of symptoms when she was a newborn. The doctor said that there was no need for surgery and that it definately wasn't bad enough to require a feeding tube, but that we would watch and it should continue to go away by the age of 18-24 months.

We go to the Dallas Children's for a endocrinology appointment on Friday. Her thyroid is high. I look forward to getting her all checked out. And then in October we get to go to the Down Syndrome Clinic of Dallas Children's where they do a variety of testing and recommendations for her. Stay tuned to hear more about both of those appointments.

She continues to track right along on her milestones. She is really thrilling her developmental therapists with her ability to communicate vocally with us. Saying "mo" for more. Shaking her head yes and no and really understanding what they mean and in appropriate times. She is able to process my questions and point to objects in books. She is just cruising along in those areas!! Motor skills are strong too. Especially the crawling. She doesn't want to be held all the time... sort of. She is trying so hard to get down on the floor and wants to hold your hand as she stands. Her big world is opening up to all kinds of possibilities. She is becoming such a big girl!!

And she has 2 yes 2 teeth. One on the lower and the opposing on the upper!! We are excited. Except for the occasional bites she manages to get in... it seems to be more fun than blowing raspberries!! :o)